Thursday, November 12, 2026

A Little Help From My Friends

On Tuesday I had my PET scan. I managed not to be too anxious going into it, but as it turned out the results were pretty bad. While the tumor that I got the proton treatment for over the summer has been eradicated, I have three new ones, and they are very active.

That was pretty devastating news.

Today I saw my oncologist. He is recommending that I sign up for a clinical trial. There is a new class of drugs, called TEAD inhibitors, that have shown significant promise in early trials. It will be a long time before all the trials are done and the TEAD inhibitors are officially approved, so the way to access them now is to take part in a trial.

If I'm not accepted into the trial or if the TEAD inhibitor doesn't work for me, I'll get chemo again. I don't want to go through chemo again, but I know that I can do it if I have to.

So there are options. I'm feeling a bit better after talking with my oncologist. It's good to have the medical team swinging into action on my behalf, and it's good to be told there are still weapons in the arsenal.

Meanwhile, as I wait to hear whether I get into the trial, and as I wait to see if the treatment works, I'd love to hear from you, my friends and family. Send me an email, pay me a visit, or leave a comment below. I appreciate all your kind thoughts and prayers over the past two years, and it would mean a great deal to me to feel surrounded by them again at this time.

4 comments:

  1. I guess both proton treatments have been very effective! But I'm so sorry to hear about the new tumors. That's such hard news after everything you've already been through.

    I'm really hoping you'll be accepted into the trial and that the treatment will work well for you.

    This seems like such a rollercoaster from over here; each piece of news can change the outlook so much. I'm glad there are still reasons for hope, and I'll be hoping the next turn brings much better news.

    Love from VA! Hope to see you soon.

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  2. I looked briefly at info about the VT3989 trial. Is that the one your oncologist had in mind?

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    1. The trial VT3989 was stopped due to side effects. I was on it for almost 3 years. Even though it has stopped I had good results as far as cancer goes but it caused other things to come about.

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  3. I'm so sorry to hear this news, Amalia! I hope you can get on the experimental treatment.

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