Tuesday, June 2, 2026

Surgery or Proton Beam?

I have now been to see both the surgeon and the proton beam radiation specialist. The good news is that they both say they can rid me of the one tumor that is acting up right now. The surgeon, whom I had consulted last year, reminded me that I have responded very well to treatment so far. He says that makes me unusually well situated for localized treatment. Normally the surgery for pleural mesothelioma is brutal and involves peeling the pleura off the lung. I would not get that kind of surgery but a much more circumscribed procedure. His encouraging words were enough to get me thinking seriously about surgery. By the same token, though, I am also a better candidate for proton beam therapy than is usually the case with mesothelioma.

So I am still (or again) leaning toward proton beam therapy, as it is non-invasive. And it being proton radiation, rather than conventional radiation, the radiation dose to the rest of my body would be slight. Protons deposit virtually all their energy at the end of their path, which is carefully tuned to be where the cancer is. So there is no exit path and very little energy released along the entry path. That sounds good to me.

Next week I'll see my oncologist, and the week after that, my consulting research specialist; then I'll make my final decision.

Meanwhile, I have already gone for a "simulation" for the proton radiation. This included, among other things, a test to see how long I can hold my breath. Breathing is a challenge for aiming radiation properly when the tumor is at the base of the lung. (There's an irony in breathing being a problem for a procedure intended in the long term to keep me breathing.) Luckily, I passed the test. 

In other news, I am looking forward to going to the Grapholinguistics in the 21st Century conference later this month. 

And I finally have blooming Canterbury bells.

Biennial Canterbury bells: Patience rewarded


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